Executive Summary Report: Voice of the Patient and Caregiver During Chemotherapy Treatment

Eleven patients and six caregivers were identified and recruited by Living Beyond Breast Cancer. They engaged with RAN’s interviewer over a 16-week period, during chemotherapy, in the second half of 2016. Questions were posed each week. Analysis focused on process measures, to evaluate the feasibility of the method. Additional analysis sheds some light on content, to begin the evaluation of usefulness of information, but is limited due to sample size.

The design and intent of the project was focused on gathering information, but was not intended as an intervention. Others may see the approach and be able to envision intervention-oriented uses that make great sense. To be clear, “intervention” was not within RAN’s project objectives nor expertise.