Precision Medicine
Research Advocacy Network has taken the lead in educating advocates and the public about genomics and proteomics and the need for biospecimens to advance the science driving more individualized therapies.
Activities to advance this area include:
- Publications and materials to inform and educate about Tissue Donation (see Resources page to order)
- Tutorials for advocates on Genomics in Cancer, Biomarkers in Cancer, Pathology and Tissue Research, Targeted Therapies (see Resources page to order)
- Conducted Think Tank with advocates and researchers to identify "Tissue Issues"
- Report from Tissue Issues Think Tank I
- Report from Tissue Issue Think Tank II
- 2013 Conference Clinical Trials in The Genomic Era of Medicine (Report summary)
- 2014 Think Tank on Molecular Diagnostics (Backgrounder document) (Notes from meeting)
- Presented comments at FDA Public Hearing on In Vitro Diagnostics (testimony document)
Precision Medicine in Oncology Educational Resources
The Precision Medicine in Oncology online course is a free, self paced, narrated course. Each of the five chapters will take 15-25 minutes to complete. You may complete all five chapters in one session or stop and return to the course at a later time. After completing the course you will have the option to print a certificate of completion. Enrollees may also participate in the accompanying discussion group in the learning portal.
Click Here to Enroll Click Here for More Information
Use the code PrecMed2017 on the form.
Precision Medicine Symposium
The Precision Medicine Clinical Trials in Oncology Symposium was convened at the Grand Hyatt Hotel in Dallas Fort Worth, 8 – 10 November 2017 to help patient advocates in decision making roles learn more about the current state of precision medicine in oncology and to gather input on the design of future precision medicine trials. The specific aims of the Symposium were as follows:
- To employ a framework for gathering feedback from patient advocates about patient issues in precision medicine in oncology.
- To implement the PCORI principles of engagement in development of the symposium and dissemination of the results.
- To facilitate meaningful interaction and idea sharing between advocates and clinical trial leaders that will influence the design of precision medicine trials.
- To Increase the knowledge of advocates in decision making roles about the issues and barriers to precision medicine trials from the patient perspective.
